In 2007, the NC legislature funded the University Cancer Research Fund (UCRF - ucrf.unc.edu), to be used for cancer research at University of North Carolina Hospitals (www.unchealthcare.org) and the UNC Lineberger Comprehensive Cancer Center (LCCC - unclineberger.org). The mission of the UCRF is to save lives and reduce suffering from cancer, and one of its first priorities was to establish The UNC Health Registry/Cancer Survivorship Cohort (HR/CSC) to aid research into cancer survivorship.
The goal of the UNC Health Registry is to better understand the causes of diseases, like cancer, which affect many North Carolinians. We aim to prevent diseases, find better ways to treat them, and also help people live their lives fully if they have illness or are in treatment. You can be a valued part of this study.
We hope to enroll 10,000 participants in the HR/CSC. If you are 18 years of age or older, have a North Carolina address, and an appointment in the North Carolina Hospital system we invite you to play an important role by participating in this extraordinary effort.
If you are already a participant in the study, thank you so much for your ongoing contribution. We appreciate the valuable time and energy you give us and our researchers are working hard with the information you have volunteered to stop cancer entirely as well as to help make current treatments more effective and bearable for you, your loved ones and generations to come.
Meet your UNC Health Registry recruitment team!
Patients that would like to participate in the UNC Health Registry/Cancer Survivorship Cohort (HR/CSC) sign Informed Consent and HIPAA Documents after careful review with our recruiters. The signed forms are stored securely in HR/CSC records and paper copies of the informed consent and HIPAA documents are given to the participants. The valuable, de-identified information volunteered from our patients is collected in the Lineberger Data and Biospecimen Repository and made available to researchers to further the research aims that will ultimately make a difference in cancer diagnosis, treatment and survivorship.
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